Friday, October 31, 2008
Tuesday, October 28, 2008
Pictures
Here are some pictures from the past week. Brandon is doing great. The visiting nurse was supposed to come for the last time tomorrow but the insurance company won't pay for anymore visits so she won't be coming. I was looking forward to seeing how much he weighs but I will have to wait for his pediatrician appointment which is in mid-November. Stu and I went out last night for the first time. We went to the Coldplay concert. The daughter of one of Brandon's primary nurses babysat. She is going to school to be a nurse and is trained in both CPR and on the apnea monitor.
Sunday, October 26, 2008
RSV is here and we're hibernating
I am posting about a very important matter: RSV. For those of you who plan to visit us over the next few months, and even if you are not, please take a few minutes to read this.
I want to start by saying that we are experiencing the biggest challenge of our lives, and we’re lucky to be surrounded by so many family members and friends who have shown us so much love and support.
We’d also like to share an important topic that we recently discussed with our pediatrician. If you are not aware of RSV, respiratory syncytial virus, you are among the majority. Most people have not heard of RSV, even though nearly every child has had the virus by age two. For full-term babies, RSV typically is not any worse than a common cold, but for preemies, the virus can be quite different. Babies born earlier than 36 weeks are at the highest risk for serious complications like pneumonia, bronchiolitis, and other sometimes fatal complications.
Brandon was born premature, was a multiple for the majority of the pregnancy, and had a low birth weight; these are among the highest risk factors for contracting RSV and developing serious complications. This website offers a great visual comparison of a preemie’s lungs compared to the lungs of a full-term baby: http://www.preemiecare.org/LungsTrees03-4.pdf
Preventing the spread of RSV is very difficult. Thus, we must be vigilant about keeping Brandon safe during RSV season (October through April). The virus is spread through physical contact, in the air via a cough or sneeze, or by touching an infected object. The virus can live as long as six hours on hands and up to twelve hours on objects, and it spreads very easily, especially from child to child. Studies have also shown that infants pose an even higher risk of spreading RSV to others.
You may ask, “Can’t they fight it off and build up their immune system? Kids need to get sick, right?” The simple answer is NO. Since Brandon was pre-term, he did not acquire the necessary immunities to fight off infection. If he contracts RSV, he could be hospitalized and develop serious complications.
We’ll be asking our visitors to follow a few guidelines to help prevent Brandon from contracting RSV or any other illness.
We ask that all visitors do the following:
1. When you arrive, please wash your hands and use hand-sanitizer as needed before touching Brandon.
2. Please, if it is possible, get a flu shot.
3. Please refrain from coming over if you are currently sick and have not been symptom-free for at least 5 days, if you live with someone who is sick, or have been in close contact with someone who is sick.
4. If you smoke, we ask that you change your clothing and refrain from smoking prior to visiting, as a preemie’s lungs are very sensitive to smoke. Most RSV sites recommend against passive smoke exposure.
5. If you are parents to a baby or toddler, please refrain from bringing them to our house during RSV season.
Unfortunately we will not be attending many events during RSV season. Our goal is to make it through this and the next RSV seasons without Brandon contracting RSV or any other serious illness. His lungs are still very fragile until he is 2-years-old.
Please understand that this post is not meant to offend anyone, just simply to provide an explanation. We hope you understand, and we appreciate your help keeping our baby safe.
Here are several resources with additional information about RSV below.
http://www.preemiecare.org/rsv_resourceshtm.htm
http://www.preemiecare.org/rsvfaq.htm
http://www.preemiecare.org/rsv2.htm
http://www.mostonline.org/preemieBB/viewforum.php?f=82
Love and best wishes to all!
I want to start by saying that we are experiencing the biggest challenge of our lives, and we’re lucky to be surrounded by so many family members and friends who have shown us so much love and support.
We’d also like to share an important topic that we recently discussed with our pediatrician. If you are not aware of RSV, respiratory syncytial virus, you are among the majority. Most people have not heard of RSV, even though nearly every child has had the virus by age two. For full-term babies, RSV typically is not any worse than a common cold, but for preemies, the virus can be quite different. Babies born earlier than 36 weeks are at the highest risk for serious complications like pneumonia, bronchiolitis, and other sometimes fatal complications.
Brandon was born premature, was a multiple for the majority of the pregnancy, and had a low birth weight; these are among the highest risk factors for contracting RSV and developing serious complications. This website offers a great visual comparison of a preemie’s lungs compared to the lungs of a full-term baby: http://www.preemiecare.org/LungsTrees03-4.pdf
Preventing the spread of RSV is very difficult. Thus, we must be vigilant about keeping Brandon safe during RSV season (October through April). The virus is spread through physical contact, in the air via a cough or sneeze, or by touching an infected object. The virus can live as long as six hours on hands and up to twelve hours on objects, and it spreads very easily, especially from child to child. Studies have also shown that infants pose an even higher risk of spreading RSV to others.
You may ask, “Can’t they fight it off and build up their immune system? Kids need to get sick, right?” The simple answer is NO. Since Brandon was pre-term, he did not acquire the necessary immunities to fight off infection. If he contracts RSV, he could be hospitalized and develop serious complications.
We’ll be asking our visitors to follow a few guidelines to help prevent Brandon from contracting RSV or any other illness.
We ask that all visitors do the following:
1. When you arrive, please wash your hands and use hand-sanitizer as needed before touching Brandon.
2. Please, if it is possible, get a flu shot.
3. Please refrain from coming over if you are currently sick and have not been symptom-free for at least 5 days, if you live with someone who is sick, or have been in close contact with someone who is sick.
4. If you smoke, we ask that you change your clothing and refrain from smoking prior to visiting, as a preemie’s lungs are very sensitive to smoke. Most RSV sites recommend against passive smoke exposure.
5. If you are parents to a baby or toddler, please refrain from bringing them to our house during RSV season.
Unfortunately we will not be attending many events during RSV season. Our goal is to make it through this and the next RSV seasons without Brandon contracting RSV or any other serious illness. His lungs are still very fragile until he is 2-years-old.
Please understand that this post is not meant to offend anyone, just simply to provide an explanation. We hope you understand, and we appreciate your help keeping our baby safe.
Here are several resources with additional information about RSV below.
http://www.preemiecare.org/rsv_resourceshtm.htm
http://www.preemiecare.org/rsvfaq.htm
http://www.preemiecare.org/rsv2.htm
http://www.mostonline.org/preemieBB/viewforum.php?f=82
Love and best wishes to all!
Wednesday, October 22, 2008
Opthamologist and Visiting Nurse
Brandon had an opthamologist appointment this morning. His eyes still do not have plus disease so he still does not need the laser surgery. Dr. Turtel says they look good enough for him to come back in 2 weeks instead of next week. We have been going weekly since he was discharged. His eyes still have not finished developing even though he is past his due date when they should have which is why he needs to go back.
The visiting nurse also came today. Brandon weighs 7 pounds, 15 ounces. That was naked so I guess yesterday's weight even though he had his diaper and onesie on was accurate. We did tummy time with Brandon while she was here and played on his playmat. He was wide awake for a few hours this morning just looking around and kicking. He also has been downing his 3 ounce bottles the past few days so I am slowly increasing the amount he drinks by 5 cc's a day.
Tuesday, October 21, 2008
Pulminologist Appointment
Brandon went to the pulminologist (Dr. Sembrano) for the first time today since being discharged from the hosital. He went for two reasons. One was so he could get his next RSV shot and the other reason was to see how he was doing with the apnea monitor. The nurse weighed Brandon when we got there and he weighed 7 pounds, 14 ounces. I am sure it is off a little because he had a diaper on (it was dry) and his onesie and the apnea belt. The visiting nurse comes tomorrow so I will have a more accurate weight then. Dr. Sembrano then came in and did an exam on Brandon. His lungs sound great and he was very happy with how Brandon is doing. He hooked him up to an oxygen machine to see what his oxygen saturations were and his sats were 99% which is great. Dr. Sembrano said as Brandon is growing so are his lungs which is helping him do well. He is going to keep Brandon on the two diuretics at least until we go back next month for the next RSV shot. I am allowed to take Brandon off of the apnea monitor when he is awake. The only time he needs to be on it now is when he is sleeping and if I am not in the room with him. It showed that Brandon is doing some periodic breathing but that should resolve itself eventually. He has not had any apnea episodes.
Monday, October 20, 2008
Tummy Time
I put Brandon on his playmat to do some tummy time today. Hershey decided that he was going to do tummy time too. It was very cute seeing both Hershey and Brandon together.
Sunday, October 19, 2008
Game Day
I dressed Brandon in his Steelers sweater today that my mom crocheted for him. The Steelers were not on tv today but he looked cute in his sweater anyway.
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