September 15, 2008

Brandon had a good day yesterday and has had a good day today too with his sats. The setting on his cannula is 25% right now and he his sats have been mostly between 97% and 100%. Brandon had a bath last night. He was SO angry when he was put on the scale before his bath that he did not like his bath as much as usual. He had a repeat echo this morning to make sure that his PDA is still closed. I didn't realize that they can reopen. I spoke to one of his nurses from Monmouth and his nurse today and both said that he is old for it to be reopen. They also said he would probably be showing signs that it had reopened such as high blood pressure which he has not shown. They said it is routine here to get a repeat echo. I should have the results late this afternoon/ early evening. He was not at all happy during the echo. It took about 45 minutes and he got pretty stressed out. He would only settle after it when I was holding him. Speech came to do her consult 10 minutes after the echo but she could not do much with him since he was still stressed. In order for him to bottle feed she needs to do a consult on him since that is the way it is done here. Never mind the fact that he had started on a bottle before coming to CHOP. She said that he sucks good and swallows good. That is as far as she got because he was too stressed with her. She is going to come back at 3:00 to see if he has settled at all. He settled immediately once she was gone while I was holding him. I seem to be the only thing that really settles him. Once I hold him he relaxes right away. The only change during rounds today is his feed was increased to 40 cc's.